A baby in Florida has only had a few weeks of life today – without the generous donor of anonymous donor, it was impossible.
When Bill and Meg Longhenry welcome their second child, Millie, in August 2023 Rare and serious A congenital brain disease is called Alobar Holoporsencephaly (HPE).
Statistics show that HPE affected about 10,000 live births and most babies were unable to survive outside the first week. Millie was born in the worst condition.
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“We found that she has one Rare brain malformations “In a part of her brain doesn’t develop, and the other part doesn’t develop correctly,” Meg Longhenry said in a camera interview with Fox News Digital.
“So there is no division between the two hemispheres, and the middle is hollow.”
Millie Longhenry (left) was diagnosed with severe congenital encephaly at 2 months old, known as Alobar Holoprosencephaly (HPE). (Photography by Nadine B.)
The doctor told the parents, “Milly should have had an abortion or a stillbirth,” her mother said. “She should die a moment after birth.”
“They tell us that 95% of patients cannot survive the first few months of the first few months … and anyone who used to require a lot of medical care, such as feeding tubes and snorkels,” Bill Longhenry said. “Often they have no brain function.”
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After two months in the hospital, Millie was taken to hospice care for four to six months of life – but long-term people are not ready to give up.
“God has other ideas,” Bill Longhenry said. “God has different plansOnly God can truly make this decision. ”
The doctor told the baby’s parents: “Milly should have had an abortion or a stillbirth.”
A friend suggested that Millie’s parents connect with Dr. Brandon Crawford, a functional neurologist at the Austin Neurodissociation Center, who specializes in using non-invasive techniques without medication or surgery.
Crawford reviewed MRI and inspected Millie, saying he saw “huge potential”.
Millie posed with her big brother Theo, born in the worst Alobar Holoporsencephaly. (Photography by Nadine B.)
He said that while most of her brain was missing, the higher part was “relatively intact,” he told Fox News Digital Digital.
“I started to understand that this kid was really working hard – she wasn’t declining, she was actually fighting to live in this world.”
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Millie under the care of Crawford Rehabilitation processIntegrating with the original reflex, it “retrains” brain-body connections and helps babies learn to better control their own movements.
Neurosurgeon Dr. Marcella Madera serves as medical director of Neurosolution, and he has also collaborated with Millie’s treatments to ensure safety and effectiveness.
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“It is this regenerative medicine, the combination of developmental function neurology and photogenetic regulation that causes her brain development and promotes her brain development and establishes neuroplasticity,” Crawford told Fox News figures in another interview.
“For example, she can clearly see that she responded to visual cues – but she didn’t have most of the visual pathways developed in the brain,” he continued. “This means that her brain has reintegrated and reshaped the ability to observe, which is an amazing part of the brain being able to do that.”
At the Neurodisintegration Center in Austin, Milly began a treatment program that included laser light therapy, sonic therapy, the use of sound waves to stimulate the natural healing process, and the integration of original reflexes. (Bill and Meg Longhenry)
Bill Longhenry describes this treatment as “combining physical therapy with neurological function.”
Today, Milly not only survived, but flourished—a situation that is very rare, Crawford said.
“She continues Grow and develop He said it was getting stronger and stronger. Her shared concern continues to improve, even her ability to eat. ”
Crawford said Milly also began to speak out, saying “mom” and “dad” and communicating with her brother Theo.
“She has a small personality, which is amazing,” he said. “Honestly, if you look at her and interact with her in person and then look at her MRI, you wouldn’t think it was the same kid.”
Milly smiled, responding to her name with a smile. Her family said she also knows people’s words and uses sign language. (Photography by Nadine B.)
Milly smiled, responding to her name with a smile. She also knows what people are talking and is using sign language.
Meg Longhenry added: “If we didn’t do different things to help her brain, help her reconnect, we wouldn’t be here today.”
Answer the prayer
Last month, Milly’s family faced the possibility of canceling her intensive Neurotherapy Due to financial restrictions.
Meg Longhenry recently let Crawford know that due to lack of funds, they had to cancel the next treatment – but he told her to come in any case.
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“I said, don’t worry, just come.
On the morning of March 27, Crawford’s team is about to perform another Regenerative Medicine He told Fox News Digital that they prayed with Millie’s program.
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“A few hours later, we got a random call,” he said. “It was another patient who had been following Millie’s story, and she said, ‘I think I should donate to Millie’s case, and my front desk said, that was amazing.”
Bill Longhenry is held with his daughter Millie. “She continues to grow and grow, becoming stronger and stronger,” he said. (Bill and Meg Longhenry)
Donors offer to make up for the total outstanding balance of Millie’s treatment – over $47,000.
“It’s impossible to understand the level of generosity of a stranger,” Bill Longhenry said.
“We have to pursue this treatment, but it’s not Covered by insuranceso we just do everything we can to make it work. ”
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Eventually, Longhenrys did find out who paid for the medical expenses-Dr. Crawford’s previous patient. They were able to call her and thank her for her donation.
Although the anonymous gift cleared a major financial hurdle, Milly’s journey was far from over, but the family shared it.
Millie poses with her big brother Theo. In March, an anonymous donor named Austin, Neurosolution Center, offered to pay Longhenrys’ outstanding debts. (Bill and Meg Longhenry)
She will require follow-up every four to six months, dedicated home equipment and ongoing care travel, and insurance does not cover it.
“I think the financial situation is always horrible for us…but I don’t have the price to her life,” Meg Longhery said. “I’m going to keep fighting and do what I need to do so she can have the best life possible.”
“I have no price to pay for her life.”
Family also rely on Heavy faithAccording to her mother, Jesus thought through Dr. Campbell’s efforts to help save Millie’s life.
“We serve a great God, who is greater than our greatest fears – He is the greatest physician, who aligns us with where we need to be and who we need to be.”
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“It’s really encouraging to see growth, and we’re repeatedly told us that we can’t see growth.”
For more information on Millie’s journey and progress, people can visit MovingMountainsFormillie.org or @movingmountainsformillie on Instagram.
